Isobel wasn’t on form at PACE today, so we weren’t expecting any more from her – until this.
At 6.30pm Isobel decided to take a walk. Twice. And fast, from one room to another, and back again. AND she needed only one person to support her.
At one point, she even paused to point at objects of interest – like a tourist – before moving right to the far end of the room to look at the washing machine.
Isobel Mostyn-Thomas, you do amaze us at the best of times.
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This is *so* cool
Thanks! We’re absolutely thrilled for Isobel.
Thrilled for you all watching this. I was close to tears watching, so lovely to see her walking and pointing out things. My daughter has never managed to walk, it would have been wonderful for her if she’d been able to and for us because it would have meant she could have done standing transfer’s etc. Having the ability to walk makes such a massive difference to the child and to the parents/carers, it really is wonderful that she’s doing so well. She is a credit to you both, you must feel so proud.
xx
What a beautiful girl she is too
Thankyou Jo
. I know how easy it can be to contrast one child with CP to another, because CP itself is so wide-ranging so you never really know what to expect – as you know as a mum of six (which, I must repeat, is incredible! I doff my cap to you), you can’t just tick off developmental milestones like you can with non-disabled children.
I don’t need to tell you this, but I think it’s important for others reading these comments to remember that every child is an individual, and the nature of any disabilities that they have reflect that individuality. So we have to try and focus on the positives, by looking within the framework of our kids’ disabilities and seeing what capabilities we can draw out.
Isobel may be making huge strides with her walking, but her communication abilities are harder to come by for instance. She has hardly any speech and signing is limited, but she IS starting to express herself in non-verbal ways (see I want, I want, I wanna-wanna-wanna-WANT!). So we’re working with communication symbols, exploring iPads, and tuning into her moods.
That’s just an example but I’m sure Paige has skills and qualities of her own that you treasure. How old is she now? x x
Definitely, every child is so very different & such an individual, even those with a similar condition or medical diagnosis.
Paige will be 15 this year. I know it’s a cliche but I don’t know where the years have gone !
She didn’t really start to gain the ability to speak until she was about 5, due to the muscle tone in and around her mouth. She had her own way of communicating before this however & did a bit of Makaton. She is a right chater box these days although she can be a little difficult in places to undersatand for people not tuned in/familiar with her.
We do treasure her sense of humour, she amazes everyone with it & gives everyone around her a laugh each day. Often people don’t expect her to be funny (or sarcastic even at times !). So she often surprise people with her humour and understanding.
Children are so much more resilient than I think I ever gave them credit for. She’s always smiling despite her struggles, she is a joy, just as I’m sure Isobel is to you
xx
I wish there was a ‘Like’ button for that comment! I am so glad. Looking forward to more blog updates from you soon! x
Likewise & thak you xx
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