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Managing expectations. It’s a fine balancing act where parenting children with disabilities is concerned. You don’t want to give up on them too easily; neither do you want to baby them, or impose unrealistic expectations on them. Where do you … Continue reading
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When Ben turned one nearly three weeks ago, I had a moment of contemplation – to which I have returned, again and again, ever since. It’s a piece of history that won’t be repeated, as two is quite enough for … Continue reading
Last February, I wrote about why our residential location suited us and Isobel – that is, until Benedict was born. Since then, we have decided to stay put and build an extension instead. (More about this in a future post.) We … Continue reading
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(Isobel’s nursery’s child safeguarding policy dictates no photos, so I am using a stock image instead.) “I like Isobel.” “Can I climb on Isobel’s chair?” “Isobel is a fairy. Can I be her friend?” These were the sort of questions … Continue reading
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Last time I wrote about the buggy, I knew that Isobel would still be dependent on it by age three. I knew that it wasn’t 100% perfect, but that it would be best for us given the space and capacity … Continue reading
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Before motherhood beckoned, the world was just one railtrack away. Once I’d accepted that the best way to empower myself as a deaf person was to go freelance, I steamed ahead on the work train. It wasn’t easy. First I … Continue reading
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Ben started nursery today. I am so happy. It means that he can get on with his socialization, plus I get to stroll through one of the loveliest, most verdant parts of the Chiltern Hills en route each time. That … Continue reading
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Thought I’d share with you a rather touching moment of interplay between Isobel and Ben today. http://files.photosnack.net/app/swf/EmbedCanvas.swf?hash_id=pzkfr53p&t=1334619345 Following months of indifference towards the stacking rings, on the spur of the moment Isobel decided that her baby brother should have the … Continue reading
That Leonardo di Caprio once acted disabled won’t surprise some. In an early appearance in What’s Eating Gilbert Grape? the actor affects what looks like classic CP behaviour to illustrate his character’s learning disability. It’s very convincing – which must make actors … Continue reading
We find it extraordinary that we live in the vicinity of PACE. For many families with children with motor disabilities, this doesn’t just happen. Provision of specialist educational services like PACE across the UK is patchy at best – and … Continue reading
