At 11 1/2 months, Isobel Mostyn-Thomas was diagnosed with cerebral palsy.
Following a traumatic birth on 30th June 2009, in which she was suspected to have hypoxic ischemic encephalopathy (HIE) – a form of brain damage – she sustained a seizure at 12 hours old, and was prescribed phenytoin. After six fit-free months and four weeks without medication, the seizures returned on Christmas Eve.
Today Isobel has not had a single fit since August 31st, 2010, although she continues to take medication twice a day. As a result of both the seizures and her brain injury, Isobel acquired global developmental delay and microcephaly – and has been working to overcome her disabilities ever since.
Born in Oxford on 12th October 2011, Benedict is the youngest member of the Mostyn-Thomas household. His birth proceeded without incident and he is now settling happily into nursery and his role as Isobel’s baby brother.
My grand passion is freedom of expression and it is this that drives my diverse love of the arts and media. My writing has appeared in Vogue, Esquire, The Independent, BLOOM, The Huffington Post and Disability Arts Online, among many others. In 2011 I debuted as a scriptwriter and director with CODA, a TV drama short produced by Neath Films in association with the BSLBT that was broadcast on The Community Channel and Film4.
Having grown up deaf nearly all my life, both diversity and communication play an integral part in everything I do. I am particularly enthusiastic about contemporary art theory and ideology, arts criticism, film, creative writing, fashion and art collaborations, and disability/deaf arts.
I was interviewed by Lizzie Ward recently as part of her Writer Interview series. To read it, click here.